I am to spent to write a whole blog post so instead I will post an SMS that I exhaustedly sent out last night..
This post will not do justice to the beauty and grace with which Bede deals with this cancer. I have said it before but it remains his indelible truth – his light is undimmed. Hopefully I will have the emotional energy to write a post on how his gentle warm and loving soul is travelling soon. The purpose of this post is just to desperately recruit your positivity, prayers, whatever love you have to throw at us. We ache with love for our little boy.
Hi everyone, I’m sorry to say we had some bad news today.
The tumour has doubled in size in the last 4 weeks, it has haemorrhaged in on itself, there are new legions and the bits of spread he had before are bigger.
Without chemo we would have 2-3 weeks left. With only one round of chemo under his belt we haven’t given it much of a chance to work but its not looking good.
Because we don’t know how responsive it is to the chemo (traditionally not very responsive at all) we don’t how how long we’ve got with bede. At this point it doesn’t look like we’ll be getting the miracle we all so badly wanted.
I just humbly ask you all to keep him in your thoughts and hearts and prayers. If there was ever a time to hope against hope or just to pray for Bede generally it would be now with the 2nd round of chemo absorbing into his resilient little body. Please send our precious boy all your love.
The white mass in the attached black and white photo is a picture of the tumour to give you an idea of what we are up against.