sharing a joke
This last 6 weeks have been a gorgeous time of happiness, abundant laughter, growth and development.
I was working on a post a while ago and wrote this…
I want so badly for this blog to represent Bede’s gentle, strong, light filled soul. I want it to represent his resilience, his tenderness, his strength and just how profound he is but sometimes like right now he’s just my boy and I’m just his Mum. Its as simple as that and that is more than enough for me and him and our little family existing in our blessed little world. We are happy. I am busy being a mum and he is busy being a joyful little boy.
Some of you may know things have changed for us in the last week but I wanted to share all of this with you nonetheless. The updates have been few and far between because we have been busy relishing in life and the joy of Bede.
I have another blog to go up in an hour or so. I know many of you are waiting for news on Bede. He is small but he is mighty.
Is x
Bandana day for canteen
teething on the couch. happy to be home
so much chemo
hey kiddo… you’re meant to be sick
ede shining gently, overcoming sepsis
walking in support of kids with cancer
chilling with the amazing Abby
Bede’s 10 month birthday party kicked on onto the night
irrepressible
and they said he wouldn’t eat!
first water fight
chilling out at home
so sick, so tired, 2am chemo blues
The Bede Update 
Pingback: Bright blessed days and dark sacred nights. | The Bede Update
Gorgeous strong boy! I adore the beach one!
Bede,
We have been following your story, what a gorgeous strong boy you are. You are fighting the worst battle there is to fight with such strength, we prey for you little man & we just wish a miracle would happen for you & your beautiful parents. Your always in my thoughts and prayers xx
The candle reminds me of a quote “even if you blow my candle out, I’ll still glow”
I think it Sean’s even sometimes when the flame is gone there is still red ember on the wick which means the light in a way never goes out it just changes. Also it can relight into flame at any second
Hi Issy, I have just discovered Bede’s Update. We have only ever chatted briefly at PMH but I have always admired you for your positivity and beautiful smile. I have been glued for the last two hours getting to know the mighty Bede. What an amazing gift you are giving to him and all of those around you by sharing this journey and the light and strength that shines from this beautiful soul. I’m aboard Team Bede. He is now in my prayers and has taken a little piece of my heart. ( Gabe’s Mum )
Wow lorena, thank you so much for commenting and for taking the time to see him. Such a generous comment and you have positively lifted my spirits today 🙂
So happy to hear he has a piece of your heart, Gabe has always had a piece of mine. He is such a gorgeous kid.
Merry Christmas!
I will see you soon no doubt. x
Such a beautiful, beautiful boy. So much to be proud of. Still sending love and prayers to you all. xxx