Hold this space

We have so much to share with you all. As soon as we have had enough time to sit with all the different pieces news and process them ourselves, as a family, I promise you we will.
As soon as I feel like I can adequately convey the light and shade of it all I will.

In the meantime I wouldn’t get too invested in any of the third hand whisperings that are doing the rounds and I can’t  let them rush us.

We have some more big positive posts coming up and we can’t wait to share them with you.

For now here is Bede.

imageHis agitation has passed. He can’t tolerate any feed at the moment and has been losing weight. He ended up needing a general anaesthetic just to get a drip in so we could hydrate him and yet he does not falter.

Bede is irrepressible, unstoppable.
He is nearly crawling and always laughing.

He is growing and developing.

He is hope.
He is light.
He is shining.
Busy embracing life and rolling around after his brother or the dog. He is enjoying himself.
I can’t help but smile as I type this just thinking of him at the moment is such a delight. He is so happy and cheeky and fun.

image image image image image
Thank you for your patience, for standing with us. Thank you for your love.

We are both so grateful

I promise the updates will come soon.


Issy and Roy

12 thoughts on “Hold this space

  1. Bede is an amazing little boy! Such a beautiful, strong inspirational little fighter! Keep shining 🙂 your whole family is such an inspiration, such beautiful people 🙂

  2. It makes me smile to see such happiness in these beautiful photos. The world is a better place with Bede’s beaming smile!

    I constantly ask the stars to line up and send all the love, light and positivity with its special miracle to you all xxx

  3. Enjoy the light kissed times – the Bede blessed times – We the prayer party that follow Bede’s journey can wait for news. Take the time to just be.
    Continued Blessings
    Josephine Curtin

  4. I am always thinking about you, always wishing you are well and fighting strong. You are an inspiration and remind me how much I love my children and for that perspective I thank you, beautiful ray of sunshine x

  5. Hi Issy, I have tried to keep up to date with Bede’s progress through my grief. Matty thought he was the cutest baby ever. I think of you often and I marvel at how succinctly you tell Bede’s story. I wish that you are all surrounded by so much love but I see that you are. Take good care of each other. Sending hugs ♡♡♡♡ Shelley Carulli Matthew’s Mum

    • Shelley, we always hold you and your family and your remarkable child in our thoughts and our prayers. You have the dignity, love and grace we should all aspire to in such circumstances. I have not wanted to reach out and intrude but we really think of you often. I am humbled you have tried to keep up with Bede I know how difficult following another child can be. hugs right back to you xxxx

  6. Having literally just shared knowing smiles with Isabella in Picu, and just now the hospital stairwell, I can honestly say that it is very clear where bede gets his shining light and resilience ;). What a team. It was inspiring to chat with you today. Liz (Charli’s mum)

  7. Pingback: Tada! Bede’s back. | The Bede Update

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