This is Bede after all.



PICU door

Our boy smiley

Bede’s been in PICU fighting for two days now. They think we could lose him.

He of course has other ideas. He is fighting with a smile.

He may be small but he is mighty and his brand of resilient happiness is not done yet.


We have prayed and loved and hoped ourselves into physical and emotional exhaustion. Bede was heading into a period of intense rehab and moving beyond his tumour into life. We are devastated all this potential for a happy life could be snatched from him when he is so close to it.

A massive thanks from Roy and I to everyoneΒ who has sent love, prayers and red bull.

Bede and his dad

I am too exhausted to convey how much this light filled child and his determination to stay with us means to us. In this moment there are no words just profound love and faith. We are proud beyond belief and hopeful beyond reason.

As one doctor who knows Bede well said… “He’ll come back. This is Bede after all”


30 thoughts on “This is Bede after all.

  1. My thoughts and prayers with you and Bede at this time. Much love and hugs.

    Trudy xx

    Trudy Bostock from my IPad 🐘🐘🐘🐘🐘🐘🐘🐘🐘🐘🐘


  2. Come on little buddy. You are a bright shining star. Courageous, indestructible, amazing – the list goes on. Power to you and your beautiful family darling xxxx shine on

  3. Dearest Isabella I am sending you tender understanding and love for Bede’s recovery. I am not on Facebook any more but please feel free to email me at any time.
    Kindest regards ,
    Shelley Carulli

  4. What lies behind us and what lies before us are tiny matters compared to what lies within us.
    Bede you keep showing the inner strength that lies within you – keep strong little man.
    Sending, love The Hartley’s🌻🌻🌻🌻

  5. I am Nicolas OBriens mum and Christine’s mum in law. Have followed your fight with your darling Bede and look foreward to all updates on your precious sons progress. Have been praying for him every day. God bless you all. Love and hugs Susie xxx

  6. Bede, Gus, Issy and Roy, our dinner prayer tonight was a hearty one just for you. We hope for health and strength and time and peace. We send you these positive thoughts wrapped up in an enormous hug.
    The Toye Family

  7. Dearest Issy & Roy
    We have not had the pleasure to cross paths. However, I feel like I know your brave little man, Bede. His determination to just get in there and do what he needs to do so he can just be with his beautiful family and enjoy the sun kissed days.
    I send you all the love, light and positivity that will help Bede through this. Thinking of your beautiful Bede always. Xxx

  8. Keep going lil Bede, you are determined as are you’re amazing family.
    You have all the love and support from your family and everyone that knows and has heard of you…
    Keep shining bright, keep fighting – we are here sending all the strength and love you need.

  9. Darling Bede, may the Angels sprinkle love and light your way. God Bless you and your family little man, strength be with you. Lyn ✨✨✨

  10. Love, prayers and light to you all, especially you Bede! Keep doing what you are doing little man, you light up this world.
    Love Bree, Mark, Aiden, Harry and Sammy xxx

  11. Photos of Bede always put a smile on my face & bring warm feelings. Sending positive vibes, strength and light to the little man. Keep shining, beautiful.

  12. Sending love and strength. I think of Bede often – am praying now for him to bounce back with his infectious smile and love. Sar in Perth x

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