I can’t really put into words my optimism right now.
Bede has been out of PICU for a little while but there was the strong chance he would have to go back especially as we were finding it difficult to maintain IV access. While that chance was there and still so strong we didn’t want to jinx it too much. Now that is looking less and less likely.
I have a lot of updating to do and I will. There is still so much big positive happy news to deliver! We need to fill you in after you all so happily ‘held this space‘ and to give you the results of our last MRI scan when we all wished for whatever was best for Bede.
For now Bede seems to have made such a strong comeback. With the incidental adjustment of some meds he is the most himself he has been in months. He laughs freely and happily and it’s glorious.
We know he’s not out of the woods yet, we know his recovery is slow almost too slow but his soul, his spirit, is strong.
We will CT his lungs on Monday and hope there is nothing unexpected or too bad there.
Hope is tangible and although Bede is still on oxygen he is nearly crawling!
Slowly but surely we are making ground.
I feel positive, optimistic, uplifted and happy all his teams are communicating with each other and us.
So the big update is being drafted as we speak…. Get excited Team Bede, get excited.
For now I just wanted to share these pictures and let you know that once again your love and prayers and positivity have helped carry him through a storm that some thought he could not weather. Our last post received hundreds of Facebook shares, thousands of visitors and views from dozens of countries. We are so deeply humbled and thankful that so many of you are getting behind Bede. We truly believe it is making a difference in his life.
Yay. Just yay! So much to say, but keep up the awesome work Team Bede. Proud of you all. Xh
Such amazing news, such an amazing spirit – thank you for sharing!
Ohh go Team Bede!! Well done little man!
You have just made my day! I am so happy to hear such wonderful news for your beautiful Bede. Keep strong. Sending love, light and positivity always xxx
Wonderful news, go team Bede!
Hello Gorgeous Boy!!! And just in time for Christmas. My heart skipped a beat when I read your comments Issy. Sending power and prosperous energy to your beautiful boy, your family & of course yourself.
That a boy Bede! “You can’t keep a good man down!”
This gives me warm & fuzzies! All the love & well wishes in the world xx
Mighty Bede…..universal love and strength to this little warrior. It’s a happy day!! 😀
You go Bede… You teach each and every one of us what it means to fight…
An amazing lil soul, keep doing what you’re doing buddy xxx
Thrilled and delighted – have been thinking of Bede and your family lots. Miracles do happen – you have a true fighter. Sar in Como xx
What a great Christmas gift.
Oh Bede you are a true little fighter. Such amazing, positive news!
Go little Bede, fight strong and hard little fella…. xxx
Oh….magical….how beautiful to see his face and hear the joy in your words. I’m just so happy. Thank you for sharing your baby! ♡♡♡
I can’t tell you how happy I am to hear this news! Just fantastic – truly wonderful. Lots of positivity being thrown your way, dear Bede and family. Big hugs, xxxxx
He is indeed an angel sent to teach us all xxx Pray every day