It’s been a while since I’ve blogged and so many of you are waiting to hear if Bede is ok. I have been a bit swamped with everything so Bede’s incredible Dad Roy has stepped up and is writing his first blog. It’s exciting to note that Bede had surgery in January that after many unexpected and life threatening complications allowed us to remove the tube from his face and feed him into a tube in his tummy. We’re loving seeing his face! Over to Roy….
The last time Izzy wrote she wrote about standing yet again on the edge of a cliff. Well Bede has triumphed he has grown he has developed he is smiling he is living.
The admission in Janurary and through part of February was a long and intense. The close medical management and care and love that was shown to Bede eventually got our family home.
Unfortunately each time we were sent home it lasted no longer than a week and bede was readmitted with more internal bleeding. It was a difficult and all consuming time where each treatment seemed to stir another issue. But Bede did Bede and got through it and levelled out.
All of this and so much more are also the reasons why the blog has not been updated it has simply been full on.
Bede is now happy not for the passing moment or glimpse we have seen in the past but truly happy, laughing from your stomach happy and he is growing. We are doing rehab 3 times a week, we are singing, clapping, playing and he is even trying to crawl. We are reducing Bede’s medications and he is putting on weight.
Someone said to me last week : “awww look at him are they steroid cheeks?” and for the first time I was able to say no Bede is chubby.
Bede is telling us when he is happy and when he is not. He is communicating. He is really living.
More than all of that Bede is part of a happy, together family. We have been at home, at the beach, we have been on ferries to Rottnest island, we go for walks and drives up the coast, we play for hours on end and then we sleep not for 2 or 3hrs at a time but for 4 or 5hrs. Our family feels whole. Our family feels happy. Our family feels alive.
For the first time in along time I feel like Bede has the world at his feet. I feel it his time to grow, to develop to catch up on the things he missed out on and to do the things people said he would never do. This is Bede’s time to live and I couldn’t be happier to be there standing along side him encouraging him and loving him.
This is also a good time to announce for those of you who might not know that Bede will be reaching another milestone shortly. Bede, along with Gus, will become a big brother to his little sister due in April/May this year.
Thanks for your patience, we feel deeply blessed. – Issy and Roy
Issy and Roy…..what a joy to see the life in Bede’s eyes and his gorgeous smile. Thanks for the update and the pics. MCongratulations on your little girl..Bede and Gus will such wonderful big brothers.
Trudy Bostock from my IPad 🐘🐘🐘🐘🐘🐘🐘🐘🐘🐘🐘
This is the most beautiful news. Never met you but so happy for your little family xxxx
Hi Isabella and Roy! Not sure if you remember me but I used to work at Catalanos at Karrinyup – I left in August (I broke my elbow in the shopping centre that might trigger your memory) I live South so I hardly ever make it to Karrinyup but I don’t stop thinking of you! The girls told me you were expecting so lovely to hear it’s a girl! – I want pictures ASAP, when are you due? I miss Bede’s little face and his smiles, thankful I can live through these posts and feel like I’m up to date with everything. Hopefully i’ll see you all soon! All my love, Anna 🙂
We definitely remember you! We have a wager going on with the girls at Catalanos but they lost! Now they won’t accept it’s a girl until she is born! hehehehe 🙂
We know you’ve been following the blog and really appreciate it. Awesome to hear from you!
Bede, how wonderful to see your smiling face free of tubes! Great to read such good news. Congratulations also on your little girl, busy but exciting times ahead xx
I am soo excited for you all as a family. I have been praying daily and also wondering how you all were as I hadn’t heard anything. Congrats on the soon to be new arrival to your family!!! I pray Bede and you all will continue to enjoy family time!!!
Thank you for your prayers Wendy, they sustain us all.
It has been such a full on time I wish we could have updated earlier.
Thank you for your care and support.
oh what Joy to see you all smiling and thriving on love and sunshine – God Bless you all on this continuous journey of life – you are in my prayers.
Josephine Curtin and family
You Are Amazing…. Bede you are beautiful and truly the most inspiring little man I know.
Enjoy everything that is yours, time, fun, life, your family…. Enjoy your wonder..
Izzy and Roy… What amazing people, what you haven’t done and given Bede and yet still provided for Gus, truly amazing…
Enjoy every moment – it’s been a hard road and you deserve every single happiness…
Thank you for keeping us posted, it has warmed my heart xxxxx sending love to you all
This is the best thing I have read all week, we’ll probably all year. So happy for you all and good luck with your new arrival. Keep enjoying life, you guys are truly amazing xx
Thanks Helen, Your comments are always appreciated – you’ve been following bede for such a long time now. Love has carried him through. Thank you for being a part of that.
So so happy to hear all the good news – Bede’s, Gus’s happiness, your impending exciting news. Good news indeed and, without knowing you, I am as pleased as punch for you all. Big hugs all round… xx
Dearest Isabella, Roy, Gus & Bede.
You have my day, my week, my month, my year! Such wonderful news to hear. May you all continue to enjoy all that life has to offer…. May your family continue to prosper in good health and happiness …. May love and laughter continue to fill your lives…. Such exciting times ahead for your gorgeous family – Congratulations. Xxx
Thanks so much and for all the comments you’ve left over the last year Michelle, we really appreciate it 🙂
Beyond thrilled to read your blog tonight – I smiled the whole way through reading it – well done Bede once again – and how amazing with a little sister to soon join your loving family. Am so happy that life is so great for you all. Love Sar in Como x
So very happy to hear Bede is doing well, looks like he is really enjoying life and congratulations on your good news of a new bub. Colleen
Well that is the best news I have heard in my whole life. Baby Bede, you my friend are an absolute inspiration. My husband and I are both sitting here reading this with huge smiles on our faces. Your an absolute champion little guy. What amazing big bro’s the two of you will be. congrats to you all xoxox love the Devenport Family-Gold Coast-QLD
Thanks Hope, your comments are always so appreciated! Nice to hear your husband is Team Bede to! Thank you!
Congratulations on Bede’s health and the new baby. Your pictures bring me so much joy.❤️
The best news ever! It is truly a blessing that Bede has you as his parents. You write about your journey so positively and beautifully. Congratulations on the impending birth or your little girl. What an exciting time for you all. The photos are just brilliant! Bede is mighty!!
Lovely to read such happy news! X
How absolutely wonderful! So thankful to hear the amazing life and healing happening in your world!
Hi the Darch family I have now taken redundancy from 41 years with RPH just keep Adrian updated and he will pass the message on for me
Regards Marg Rogers
Oh no! what a loss for RPH and its patients! we will do Margaret and we always appreciate your support.
Take care and hope to see you again soon.
What amazing news! Congratulations on your little girl, she is going to be one lucky girl born into such a special family!
Bede look at that gorgeous face you beautiful little boy, keep showing that amazing strength that you have.
So happy for you all. Despite not knowing you personally, this has made my day x
congrats on both issues. Bedes progress and Issies pregnancy
Thanks Deacon Paul and thank you for all your prayers. We’ll be calling on you for baptism duties again before you know it!
This blog is extra special. Love the photos, I can see the love and joy. Congratulations on your wonderful baby news! In my prayers xxx
Awesome news guys! Bede looks so happy. What wonderful news. Thanks for making my day : ) AND a a new baby Wow. Truly blessed xxxx
Happiness is a smiling Bede, so grateful for the small things.
Hey Isabella and Roy, please check your ‘others’ folder on Facebook messages :). Lovely post
What wonderful news!!! You are such an incredible family. Bede, Gus & your little baby girl soon to be born are so very blessed to have two beautiful loving parents who truly live their lives for their kids 😍 your family’s love is palpable. I wish you a lifetime of miracles xxx
So happy for you all that Bede is doing so well and enjoying life. Your faith and courage has sustained you over the months and been an inspiration to this family in far away Queensland. Congratulations on your impending daughter and sister.
I have trickling tears of happiness. I have been waiting on your update about your beautiful boy and it is the most blessed news. May your warm smile continue warming all our hearts. Gorgeous little man xxx
Dearest Bede,Isabella, Roy and Gus,
You do not know me but I have been following little bede here on your loving blog.
Reading your latest post has literally made my day and dad…..you did a good job with it being your first post.
I am thrilled to bits at seeing bede without the tube on his face.His eyes sparkle with happiness and his gorgeous cheeky smile shouts to the world look at me…I am loved .He looks really happy so I am happy for all of you.Congratulations with the news of your little girl.
Best wishes always