Feel free to give us a shout.


The disclaimer is that I don’t check these all that often. This blog and my personal accounts are about as much as I can juggle at the moment. Still worth a try if it’s super important. If you want to send your love and well wishes this blog is the best bet. We check the comments here daily.

25 thoughts on “Contact

  1. Well done, sweet little Bede. We too, are in your corner.
    Isabella, you and your beautiful boy have touched our hearts and have left an everlasting impact on our lives – the Bede effect. Thank you for sharing your courageous and inspiring journey.

  2. Hi Issy
    Praying hard for Bede and sending strength to you. I think Roy met some very dear friends of mine today when he was heating up his vegetarian lasagna.

  3. Thinking of you guys often and sending Love, Light & Strength to you & your precious old Soul~

  4. I am sending you my love and thoughts – Bede is such a beautiful brave little man – he is lucky to have such a strong Mumma like you. You are all in my prayers. Sarah in Perth xxx

  5. Little Bede, Izyy and Roy…. Thinking and praying hard for all of you. Praying for Bede to keep getting stronger and stronger and that you will get to enjoy some more beautiful family time at home again. Xxxx

  6. What an inspiration your beautiful boy is, reading your blog maybe me smile. Wishing you all the best with this awful disease if anyone can fight it its your boy tons and tons of positive thoughts coming with this post xxx

  7. I have had the same issues with 3b and its a disgrace and it all gets swept under the carpet and no accountability is ever held.

    We do what we need to do in advocating for our children.

    Keep the great work up as you are Bede’s voice and have so many people behind you xxx

  8. Happy New Year to your whole family. Remain strong and know that you have the love and support of many people who you will probably never meet. We are following Bede’s every accomplishment and every hurdle. He is in our hearts as are you. I have never met you or your family but you are in my prayers.

  9. I have not been following your story for long and I just started to read it. When I see a family going through something like this it makes me appreciate the small things we take for granted (like our health for instance). I want you to know that you and your little boy are strong, courageous, and inspiring. I am so glad to read he is doing so much better. My thoughts and prayers are with you and your family. Congratulations on the new baby.

  10. Hi, All I want to do is give each every one in your family including Bede a hug to show how much I care that words can’t describe! I am proud of you for being such great parents for Bede though it is hard to believe it is true at the moment. Please you have enough to deal with, don’t add guilt. With love Vasu

  11. I am so glad that you and your husband have stayed together, it is one of the hardest things to do in times like this and shows you are both true soul mates. Bede is just a wonderful little man and if I was allowed one miracle, I would give it to him. What a tough, determined young boy. He is truely loved and you can see that as an outsider looking in too. This site is wonderful and it will be one you will often look back on in years to come. I hope you get lots of donations so you and hubby and kids can have a little less stress in life xxx. Much love to you all and I hope the days get brighter for you all soon xxxxx

  12. I came across Bede’s story today, and have been pouring threw the blog and terrific post you made. I also have a little one who has spent way too long in the hospital in the past. Your words touched on so many emotions of that time, and learning about Bede has been a joy. Thank you for sharing your personal journey and all it entails. It is not easy but we are all better for hearing it. May Bede and your family continue to shine on!

  13. Thank you for sharing your journey. As a mother my heart just breaks. I wish you all the bravery and strength. May Bede be loved ferociously xx

  14. You are both amazing, so strong to make his life such a happy positive one…thank you for sharing…our hearts are with you all…xxxx

  15. You have been in my thoughts the last few days, our little 3 month old Noah, has a case of bronchiolitis, yesterday we had to call an ambulance because his breathing became laboured. Our whole world is upside down at the moment,we have farmed our older 2 kids to family members. Through all of it,I thought about you and your gorgeous Bede, and how the last few days for us, would be similar to what you go through on a daily basis. You are strong, you are amazing and so eloquent with your words. I don’t know you personally, but I want you to know that I do think of you daily and I send my love and support. All the way from Canberra
    Cath xx

  16. We think of Bede every day, we love his spirit and his beautiful, big smile. Bede is one lucky boy to have such amasing parents and siblings by his side all the time. And you are so lucky to have Bede in your life, with that smile and that courage to lead you through life. Ivy is sending Bede, Gus, Cress and both of you lots of kisses and hugs. XXX

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