I can’t really put into words my optimism right now.
Bede has been out of PICU for a little while but there was the strong chance he would have to go back especially as we were finding it difficult to maintain IV access. While that chance was there and still so strong we didn’t want to jinx it too much. Now that is looking less and less likely.
I have a lot of updating to do and I will. There is still so much big positive happy news to deliver! We need to fill you in after you all so happily ‘held this space‘ and to give you the results of our last MRI scan when we all wished for whatever was best for Bede.
For now Bede seems to have made such a strong comeback. With the incidental adjustment of some meds he is the most himself he has been in months. He laughs freely and happily and it’s glorious.
We know he’s not out of the woods yet, we know his recovery is slow almost too slow but his soul, his spirit, is strong.
We will CT his lungs on Monday and hope there is nothing unexpected or too bad there.
Hope is tangible and although Bede is still on oxygen he is nearly crawling!
Slowly but surely we are making ground.
I feel positive, optimistic, uplifted and happy all his teams are communicating with each other and us.
So the big update is being drafted as we speak…. Get excited Team Bede, get excited.
For now I just wanted to share these pictures and let you know that once again your love and prayers and positivity have helped carry him through a storm that some thought he could not weather. Our last post received hundreds of Facebook shares, thousands of visitors and views from dozens of countries. We are so deeply humbled and thankful that so many of you are getting behind Bede. We truly believe it is making a difference in his life.