Bede is already so soulful. Every second person, be it a doctor or a stranger, will comment on what an old soul he is. He gently shines and he reels everyone in. Nurses openly tell him they love him, strangers are drawn to him, his brother adores him and through it all he smiles. He is calm and placid and special. When you hold him he melts into you and that feeling is sublime.
From the day Bede was born we have known there was weight and substance and beauty and light all melded together in him.
He loves to look at the world and will try and have a conversation with anyone who stops long enough to listen. He is curious. He is unlike my other son who was a bundle of boyish joy, he is calmer.
I never knew it was possible for a baby to deal with illness with grace but Bede does. He does not simply bounce back as you so often hear children do. He takes a moment, considers, consolidates and then moves forward. He does so calmly and purposefully.
He softly shines and he has a gentle determinedness.
For all these reasons and more as a couple and as a family we are committed to fighting this cancer. To rising up and meeting it head on. We firmly believe if anyone can carry him through this with grit and with love it will be me and my husband. We are also committed to not ever fighting just for the sake of it. To making his life as comfortable and as sweet as possible.
Please check out the magnificent Bede’s story under the home tab at the top of the page.